The Cridge Respite Service is committed to helping families who have children with special needs and mental health challenges find a qualified respite care worker. The parents of these children are truly an inspiration- the daily routine of caring for their kids is one that requires patience, energy, compassion and determination.
Having a caregiver with the training and skills to work with these precious children is a fundamental need for parents. Yet, so often, they are unable to get the support they need as they slip through the cracks of a system that is over-burdened. Here are some examples of the struggles parents face:
- Rachel is a single mom of 4 young children, 2 of whom have complex medical needs. Recently, she has been diagnosed with a life-threatening illness and will require intense treatment. Rachel is desperate to go away for a few days with her husband before treatment starts. Even though she has secured a qualified respite care provider through The Cridge Respite Service, she has not been able to secure enough respite funding to pay for this care
- Lamar is a happy, energetic boy with ADHD. Recently, Lamar’s mother got word from the week-long summer camp he will be attending that his needs exceed the capabilities of just one staff member. In order to attend the camp, he will require an additional support worker. Neither the camp or Lamar’s mother have the funding to pay an additional worker, and thus his ability to go to camp is dependent on finding someone who can volunteer their time to support him
- Susan is a single mom who of a daughter with a learning disability and nerve paralysis. Time and time again, Susan’s daughter seems to slip through the cracks of any funding opportunities. The frustration and fatigue that Susan is experiencing is palpable. She recently shared with a staff member: “I think someone needs to point me in the way of advocacy… I’m tired of sitting silently waiting for something to happen!!”
The difficult reality for these parents is that the systems that are set up to support their children are over-burdened. The pain, frustration and exhaustion that we see in these parents’ experiences is heartbreaking. Yet the tremendous love that they have for their children, and their steadfast dedication to them, is the most powerful and inspiring part of the work we do!